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About
Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulinism.

History
CHI was formed in May, 2005, by a collection of concerned parents, caregivers, and patients. Our current Board of Directors consist primarily of parents of children with congenital hyperinsulinism. Most of us originally met online through a Yahoo! Groups community (the “hyperins” message board), launched in May, 1999.

Our Activities
We exist to support the greater congenital hyperinsulinism community through sponsoring activities (such as conferences), and representing our community’s interests, whether that takes the form of funding medical research, directly supporting a family of child dealing with congenital hyperinsulinism, organizing information on a particular issue of congenital hyperinsulinism, or helping build awareness in less developed countries. Your input is vital! Please let us know what activities you believe we should undertake.

Our Tax-Exempt Status
We are a 501(c)(3) charitable organization. In the United States, contributions to CHI are deductible on your federal income tax (subject to IRS limits). We are not familiar with laws in other countries governing the legality and tax deductibility of their citizens' contributions (yet). Please consult your country's tax code.

CHI Staff
Julie Raskin is the Executive Director of CHI. Please feel free to contact Julie about CHI or anything related to congenital hyperinsulinism. You can find Julie's contact information on our Contacts page.

Board of Directors
The current Board of Directors is given below indicating the officers as well as any focus area(s). Unless indicated, all directors are parents of children with congenital hyperinsulinism (and one even has it himself).

Name

Position

Additional information

Matthew M. Hopkins
New Mexico
United States

President

MHopkins@CongenitalHI.org

Isabel Calderón
Québec
Canada

Vice President

ICalderon@CongenitalHI.org
Contact for Canada
French and Spanish speaking

Patricia Cymerman
California
United States

Secretary

Jeffrey R. Hart
New Jersey
United States

Treasurer

JHart@CongenitalHI.org

Gabrielle Flynn
County Leitrim
Ireland

Director

Contact for Ireland

Randy Hart
New Jersey
United States

Director

Margaret Maher
New South Wales
Australia

Director

MMaher@CongenitalHI.org
Contact for Australia

NORD